I went in to get my remicade which I’ve been on since January and it’s been working. After getting hives one of the times, we started some premeds with steroids in it to help calm that reaction and it helped. August I suffered a set back when I had to wait an addition 3 weeks to have my meds due to an active infection. I go in today to get my 7th dosage. Turns out it’s my last one. After 15 minutes, I start having trouble breathing. I can’t take a deep breath in. So they shut me off and go talk to my GI. My GI decided since this is my second reaction we are done with remicade. Now I have to wait 2 weeks to even see my doctor. Plus, we then have to figure out what the next med is to try which will be even more time.
I haven’t cried that hard from pure anger and despair in idk how long. Angry cuz nothing works for me and my sister is fine on remicade. Angry cuz I have had to deal with so many illnesses and side effects my whole life and here’s another problem. Despair cuz I don’t think I’ll ever find anything that’ll work long term. I want to live a life and this is not helping me do so. This isn’t a fun outlook on life.
Eventually whenever Pavlov heard a bell ring he had an uncontrollable urge to feed a dog.